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How can parents and caregivers provide support to children with genetic diseases?

Parents and caregivers can provide crucial support to children with genetic diseases by:

  • Offering emotional support: Providing love, encouragement, and understanding.
  • Advocating for their needs: Advocating for their child’s rights and needs in school and healthcare settings.
  • Connecting with other families: Connecting with other families facing similar challenges can provide support and advice.
  • Seeking professional help: Seeking counseling or therapy if needed to address emotional and psychological concerns.

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