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What is the role of advocacy organizations in addressing the social and economic challenges faced by individuals with genetic diseases?

Advocacy organizations play a crucial role in addressing the social and economic challenges faced by individuals with genetic diseases by:

  • Raising awareness: Increasing public awareness of genetic diseases and their impact on individuals and families.
  • Advocating for policy change: Advocating for policies that improve access to healthcare, education, and employment for individuals with genetic diseases.
  • Providing support: Offering support and resources to individuals and families affected by genetic diseases.
  • Conducting research: Supporting research to improve understanding and treatment of genetic diseases.

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