How can adults with genetic diseases access the support and resources they need?

Adults with genetic diseases can access support and resources by:

• Connecting with support groups: Joining support groups of individuals with similar experiences can provide emotional support and practical advice.
• Seeking genetic counseling: Consulting with a genetic counselor can offer personalized guidance and support.
• Utilizing patient advocacy organizations: These organizations often provide information, resources, and advocacy for individuals with specific genetic diseases.
• Accessing healthcare services: Seeking specialized healthcare providers and utilizing available resources, such as government programs or insurance coverage.
• Exploring disability services: Exploring disability services and accommodations that can help individuals with genetic diseases live more independently and participate fully in society.