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What are the resources available for individuals and families affected by genetic diseases?

Numerous resources are available to individuals and families affected by genetic diseases, including:

  • Support groups: Connecting with others who have similar experiences can provide emotional support and practical advice.
  • Patient advocacy organizations: These organizations often provide information, resources, and advocacy for individuals with specific genetic diseases.
  • Genetic counseling services: Seeking genetic counseling can offer personalized support and guidance.
  • Online communities: Participating in online forums and communities can connect individuals with others facing similar challenges.
  • Healthcare providers: Consulting with healthcare providers who specialize in genetic diseases can provide expert care and advice.

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